Hannah Crazyhawk

It is a tremendous book, a balm to my heart, and a piercing cry for those of us left alone to die. The words imbued in these pages are...

I always feel pressure to post aesthetic photos that are perfectly executed to appeal to the artist’s eye. However, I can’t take those...

I wish I could have gone to medical school. I would have chosen dermatology, surgery, or palliative care. Instead, I’m barely keeping...

Today was absolute shit, except for a small window of time in Starbucks. After my oncology appointment, I had to pick up a prescription....

Today was terrible. Moments before my alarm was set to go off, the scream of a fire alarm blared above my bed. It was coming from the...

So many new diagnoses. My out-of-pocket expenses continue to grow. The amount of skin care products and treatments I need is endless....

Today brought to you by exuding wounds breaching hydrocolloid dressings. I had a deroofing surgery for my hidradenitis suppurativa on my...

It's time for doctors of patients with Hidradenitis Suppurativa to listen to their patient's needs for pain control. Dismissing, blaming,...

I detest hidradenitis suppurativa. It's killing me from the inside out and there is nothing I can do but watch helplessly while my flesh...

Today was about a doctor's appointment. I feel like it was such a wasted day. I spent hours getting ready. I didn't sleep because of my...

Today brought to you by endometriosis, menstruation, and a baseball-sized ovarian cyst clawing its way out of me. So, I'm laying as still...

So, there's a Spotify Playlist called "Y2K." I like it and must admit I miss the time when we were hoarding water and essentials for the...

Too many falls I've watched from this bed Too many days lost To the pain To the fatigue To the remains I mourn alone In this gilded cage

Spoonies weigh everything. We are masters of the way things run, feel, and cost. I mean that in every way. We know the inner workings of...

The air quality is still hazardous here. Yesterday I had an asthma attack. It hurt so much to breathe. My heart beat was erratic and...