“How to Tell When We Will Die: On Pain, Disability, and Doom” — Johanna Hedva
It is a tremendous book, a balm to my heart, and a piercing cry for those of us left alone to die. The words imbued in these pages are...
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Hannah Crazyhawk
Hannah Crazyhawk
Sep 30
The Nightstand
I always feel pressure to post aesthetic photos that are perfectly executed to appeal to the artist’s eye. However, I can’t take those...
Hannah Crazyhawk
Jul 9
A Heart’s Own
I wish I could have gone to medical school. I would have chosen dermatology, surgery, or palliative care. Instead, I’m barely keeping...
Hannah Crazyhawk
May 21
Burning Alive
Burning Alive
Hannah Crazyhawk
Mar 12
Devour
Content Warning: Trauma - CPTSD I’ve recognized something about myself recently, and it’s making me really sad. When I’m with others or...
Hannah Crazyhawk
Dec 28, 2023
Unmasking in Starbucks
Today was absolute shit, except for a small window of time in Starbucks. After my oncology appointment, I had to pick up a prescription....
Hannah Crazyhawk
Jul 14, 2023
Flesh
So many new diagnoses. My out-of-pocket expenses continue to grow. The amount of skin care products and treatments I need is endless....
Hannah Crazyhawk
Jun 2, 2023
Deroofing Surgery Sucks
Today brought to you by exuding wounds breaching hydrocolloid dressings. I had a deroofing surgery for my hidradenitis suppurativa on my...
Hannah Crazyhawk
Feb 22, 2023
Snow
As evening arrived, gentle snow began to fall on the treetops. The dark soon followed but with a blanket of silent snowfall. You've just...
Hannah Crazyhawk
Feb 1, 2023
Do No Harm
It's time for doctors of patients with Hidradenitis Suppurativa to listen to their patient's needs for pain control. Dismissing, blaming,...
Hannah Crazyhawk
Dec 4, 2022
Hidradenitis suppurativa is Hell
I detest hidradenitis suppurativa. It's killing me from the inside out and there is nothing I can do but watch helplessly while my flesh...
Hannah Crazyhawk
May 27, 2022
Moving
I have great news. I'm moving to Portland next week for my health and safety. I wish I could have made this update sooner, but I've been...
Hannah Crazyhawk
Apr 10, 2022
Endometriosis
Today brought to you by endometriosis, menstruation, and a baseball-sized ovarian cyst clawing its way out of me. So, I'm laying as still...
Hannah Crazyhawk
Feb 8, 2022
Cranial Massage Therapy
I want to share some excellent news with you. I've been receiving cranial massage therapy for a month now. It is the only thing that has...
Hannah Crazyhawk
Jan 16, 2022
Y2K
So, there's a Spotify Playlist called "Y2K." I like it and must admit I miss the time when we were hoarding water and essentials for the...
Hannah Crazyhawk
Oct 27, 2020
"Gilded"
Too many falls I've watched from this bed Too many days lost To the pain To the fatigue To the remains I mourn alone In this gilded cage
Hannah Crazyhawk
Aug 30, 2020
Dreaming
I was dreaming of hearing a young girl crying and screaming. I found her in a maze. She was clutching the right side of her bloodied face...
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