“How to Tell When We Will Die: On Pain, Disability, and Doom” — Johanna Hedva
It is a tremendous book, a balm to my heart, and a piercing cry for those of us left alone to die. The words imbued in these pages are...
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Hannah Crazyhawk
Hannah Crazyhawk
Sep 30
The Nightstand
I always feel pressure to post aesthetic photos that are perfectly executed to appeal to the artist’s eye. However, I can’t take those...
Hannah Crazyhawk
Jul 9
A Heart’s Own
I wish I could have gone to medical school. I would have chosen dermatology, surgery, or palliative care. Instead, I’m barely keeping...
Hannah Crazyhawk
May 21
Burning Alive
Burning Alive
Hannah Crazyhawk
Mar 12
Devour
Content Warning: Trauma - CPTSD I’ve recognized something about myself recently, and it’s making me really sad. When I’m with others or...
Hannah Crazyhawk
Dec 28, 2023
Unmasking in Starbucks
Today was absolute shit, except for a small window of time in Starbucks. After my oncology appointment, I had to pick up a prescription....
Hannah Crazyhawk
Dec 8, 2023
False Alarms
Today was terrible. Moments before my alarm was set to go off, the scream of a fire alarm blared above my bed. It was coming from the...
Hannah Crazyhawk
Sep 30, 2023
The Hummingbird
Waves of grief washed over me as I stepped onto my patio to refill my bird feeders. I’ll miss these little creatures, my only company. I...
Hannah Crazyhawk
Jul 14, 2023
Flesh
So many new diagnoses. My out-of-pocket expenses continue to grow. The amount of skin care products and treatments I need is endless....
Hannah Crazyhawk
Jul 1, 2023
Grief
I don’t talk about my reality much anymore here. I’m going through more than I’m able to handle. I’m not okay. Massive things have...
Hannah Crazyhawk
Jun 2, 2023
Deroofing Surgery Sucks
Today brought to you by exuding wounds breaching hydrocolloid dressings. I had a deroofing surgery for my hidradenitis suppurativa on my...
Hannah Crazyhawk
Feb 22, 2023
Snow
As evening arrived, gentle snow began to fall on the treetops. The dark soon followed but with a blanket of silent snowfall. You've just...
Hannah Crazyhawk
Feb 1, 2023
Do No Harm
It's time for doctors of patients with Hidradenitis Suppurativa to listen to their patient's needs for pain control. Dismissing, blaming,...
Hannah Crazyhawk
Dec 4, 2022
Hidradenitis suppurativa is Hell
I detest hidradenitis suppurativa. It's killing me from the inside out and there is nothing I can do but watch helplessly while my flesh...
Hannah Crazyhawk
Aug 8, 2022
Meaning
Today was about a doctor's appointment. I feel like it was such a wasted day. I spent hours getting ready. I didn't sleep because of my...
Hannah Crazyhawk
May 31, 2022
Sepsis Survivor
Today is my one-year anniversary since my first septic event from hidradenitis suppurativa. It was the most horrible medical pain I've...
Hannah Crazyhawk
May 27, 2022
Moving
I have great news. I'm moving to Portland next week for my health and safety. I wish I could have made this update sooner, but I've been...
Hannah Crazyhawk
Apr 16, 2022
Birthday
Hi, world, My birthday is April 23rd. It's been a hell year for me. I'm posting this to ask you my friends for any kindness and or...
Hannah Crazyhawk
Apr 10, 2022
Endometriosis
Today brought to you by endometriosis, menstruation, and a baseball-sized ovarian cyst clawing its way out of me. So, I'm laying as still...
Hannah Crazyhawk
Apr 1, 2022
Transgender
To all my trans friends, I see you, and I love you! ❤️ Also, just wanted to share - I'm trans/genderqueer. It's been years of hiding and...
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